CJD Exposure Horrifies Brain Cancer Patient

Creutzfeldt-Jakob Disease Contaminates Surgical Instruments With Prions

Five years after 43 surgery patients were warned that they might have been infected with Creutzfeldt-Jakob Disease (CJD) from contaminated instruments, some are still reeling from its impacts. For New Zealander Danielle Lambermon the exposure might yet cost her her life. Like others, the 26-year-old says she has been shunned by dentists, because of a fear of infection that an Australian CJD advocate rejects as ignorant discrimination.

Alzheimer's disease and contaminated dental surgical instruments

Worse, she is too scared to undergo further surgery to remove the two-thirds of the brain tumor left behind after the operation that led to her CJD exposure in 2007. Miss Lambermon was one of 43 patients told in April 2007 that they were at risk of fatal brain disease CJD, after an Auckland Hospital patient died of the disease following surgery.

“I hate being in the hospital,” Miss Lambermon said, sobbing. “I’m supposed to have another operation and really don’t know if I’m going to. I don’t think I can handle this any more.”

Like all forms of prion disease, CJD is caused by hardy prions that can survive all sterilization procedures.

Hearing the news while still recovering from largely unsuccessful brain surgery pushed Miss Lambermon further into depression. Five years on, without further surgery, the cancer has progressed.

“It has already taken her life in most regards,” Miss Lambermon’s mother Monique said. “Words can’t explain how it makes me feel.”

Another unexpected consequence was that dentists would not treat Miss Lambermon, because of infection concerns. About a month ago she ended up at Auckland Hospital’s emergency department with a snapped tooth, after an untreated cavity got progressively worse. Greenlane Hospital’s dental department has agreed to treat her, but that involves conquering her hospital fear.

Mangawhai resident Trish Gardner’s son Ben, now 29, was one of the first operated on after the initial CJD patient infected the surgical instruments that were used over and over again–exposing everyone behind him. When he needed root canals, their local dentist said he would not treat him due to fears of exposing his dental patients to the same situation. Auckland Hospital helped find him another dentist and contributed $500. But instead of root canals, which might have been an infection risk, he has now had six teeth removed and requires $8,000 of remedial work that he can’t afford.

“We just felt a bit abandoned,” Mrs Gardner said.

Australian CJD support group network national coordinator Suzanne Solvyns said denying dental treatment showed “appalling ignorance.”

prion disease epidemic

Herself at risk of getting CJD after accidental exposure, she had no trouble accessing dental care in Australia. Newly issued Australian infection control guidelines meant low-risk patients could receive any routine dental treatment, including root canals, Mrs Solvyns said.

Dental Association chief executive David Crum said uncertainty still surrounded the patients’ risk and infection control status. Until clear New Zealand guidelines were established Auckland Health Board should instruct patients on how to get safe care.

An Auckland District Health Board spokeswoman said the board believed community dental practices should be able to provide routine care, but they had provided dental treatment for at least one patient who had not been able to get community treatment.

Miss Lambermon, her mother, Mrs Gardner and Mrs Solvyns all criticized Auckland Hospital’s lack of initial and ongoing support.

Asked what the health board had done to keep track of, and provide ongoing support to, the 43 patients, the spokeswoman said follow-up varied from case to case. CJD risk management had been changed to minimize the risk of the surgical contamination being repeated.

Editor’s Note: This risk is real. People infected with prion disease can expose their entire environment via saliva, blood, urine and other bodily fluids. Surgical and dental instruments, utensils, cups, drinking glasses, toothbrushes and other items should be isolated upon diagnosis to minimize exposure to friends, family and practitioners from deadly prion disease, which is always fatal to people and animals once infected. Unfortunately, many people are unaware that they are carriers until the disease progresses to the final stages. Alzheimer’s also appears to be a prion disease. Caretakers should take the same precautions to protect themselves.

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Crossbow Communications specializes in issue management and public affairs. Alzheimer’s disease, Creutzfeldt-Jakob disease, chronic wasting disease and the prion disease epidemic is an area of special expertise. Please contact Gary Chandler to join our coalition for reform gary@crossbow1.com.

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